Level of empowerment of hospitalized chronic heart failure patient
DOI:
https://doi.org/10.23938/ASSN.0960Keywords:
Empowerment, Chronic heart failure, Participación del pacienteAbstract
Background. Establishing the level of chronic cardiac inpatient empowerment is essential. By doing so, it is possible to identify groups with a lower level. It also provides a basis for designing effective strategies to improve their control over decision making and the actions that affect their health and wellness. The shortage of studies of this phenomenon for this particular population and context suggests that such patients are not receiving proper care.
Methods. A prospective and descriptive study was carried out. A validated Spanish version of the Patient empowerment in long-term conditions scale was used. The survey has 47 items, grouped into three dimensions: Positive attitude and feeling of control, Knowledge in shared decision making, and Seeking information and sharing with other patients. It was distributed 24 hours before hospital discharge.
Results. Twenty five questionnaires were collected (81%). The mean global empowerment score of the patients was 165.92 ± 20.9. The dimension Positive attitude and sense of control showed the lowest score, with a mean of 3.4 ± 0.5. An inverse weak relationship was found between the level of empowerment and age (rho = -0.240; p = 0.000) while a positive one was found with 10-year survival (rho = 0,316; p = 0.01).
Conclusion. The level of empowerment of the patients in this study was medium-high. The strategies used to address the care of this population should focus on working on their attitude towards the disease and perceived control of the situation, and should be individualized according to age.
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References
WHO 2014. Global status report on noncommunicable diseases. attaining the nine global noncommunicable diseases targets, a shared responsibility. https://apps.who.int/iris/bitstream/handle/10665/148114/9789241564854_eng.pdf;jsessionid=1542ACAED09875EE53387B1EA882F3AF?sequence=1
Instituto Nacional de Estadística. Defunciones según la causa de muerte. España 2017. https://www.ine.es/jaxi/Tabla.htm?path=/t15/p417/a2017/l0/&file=01000.px&L=0
GO AS, MOZAFFARIAN D, ROGER VL, BENJAMIN EJ, BERRY JD, BLAHA MJ et al. Executive summary: heart disease and stroke statistics 2014 update: a report from the American Heart Association. Circulation 2014; 129: 399-410, https://doi.org/10.1161/01.cir.0000442015.53336.12
SAYAGO-SILVA I, GARCÍA-LÓPEZ F, SEGOVIA-CUBERO J. Epidemiología de la insuficiencia cardiaca en España en los últimos 20 años. Rev Esp Cardiol 2013; 66: 649-656, https://doi.org/10.1016/j.recesp.2013.03.014
COWIE MR, ANKER SD, CLELAND JG, FELKER GM, FILIPPATOS G, JAARSMA T et al. Improving care for patients with acute heart failure: before, during and after hospitalization. ESC Heart Failure 2014; 1: 110-145, https://doi.org/10.1002/ehf2.12021
OLANO-LIZARRAGA M, OROVIOGOICOECHEA C, ERRASTI-IBARRONDO B, SARACÍBAR-RAZQUIN M. The personal experience of living with chronic heart failure: A qualitative meta-synthesis of the literature. J Clin Nurs 2016; 25: 2413-2429, https://doi.org/10.1111/jocn.13285
SEDLAR N, LAINSCAK M, MÅRTENSSON J, STRÖMBERG A, JAARSMA T, FARKAS J. Factors related to self-care behaviours in heart failure: A systematic review of European Heart Failure Self-Care Behaviour Scale studies. Eur J Cardiovasc Nurs 2017; 16: 272-282, https://doi.org/10.1177/1474515117691644
MCDONAGH TA, BLUE L, CLARK AL, DAHLSTRÖM U, EKMAN I, LAINSCAK M et al. European Society of Cardiology Heart Failure Association Standards for delivering heart failure care. Eur J Heart Fail 2011; 13: 235-241, https://doi.org/10.1093/eurjhf/hfq221
MYERS SL, SIEGEL EO, HYSON DA, BIDWELL JT. A qualitative study exploring the perceptions and motivations of patients with heart failure who transitioned from non-adherence to adherence. Heart & Lung 2020; 49: 817-823, https://doi.org/10.1016/j.hrtlng.2020.09.010
VAN DER WAL MJ, VAN VELDHUISEN DJ, VEEGER NJ, RUTTEN FH, JAARSMA T. Compliance with non-pharmacological recommendations and outcome in heart failure patients. Eur Heart J 2010; 31: 1486-1493, https://doi.org/10.1093/eurheartj/ehq091
JAANA M, SHERRARD H, PARÉ G. A prospective evaluation of telemonitoring use by seniors with chronic heart failure: Adoption, self-care, and empowerment. Health Informatics J 2019; 25: 1800-1814, https://doi.org/10.1177/1460458218799458
YU DSF, LI PWC, YUE SCS, WONG J, YAN B, TSANG KK et al. The effects and cost-effectiveness of an empowerment-based self-care programme in patients with chronic heart failure: A study protocol. J Adv Nurs 2019; 75: 3740-3748. https://doi.org/10.1111/jan.14162
THAKUR RD, FLEURY JD, SHEARER NBC, BELYEA M. Feasibility study of the health empowerment intervention in older adults with heart failure. J Cardiovasc Nurs 2020; 35: 538-544, https://doi.org/10.1097/JCN.0000000000000673
OMS. Salud mundial: retos actuales 2003. https://www.who.int/whr/2003/chapter1/es/index3.html
GARCIMARTÍN P, COMÍN-COLET J, PARDO-CLADELLAS Y, BADOSA N, LINAS A. Validation of the Spanish version of the questionnaire on Patient Empowerment in Long-Term Conditions. PLoS ONE 2020; 15: e0233338, https://doi.org/10.1371/journal.pone.0233338
GARCIMARTIN P, PARDO-CLADELLASD Y, VERDÚ-ROTELLAR JM, DELGADO-HITO P, ASTALS-VIZCAINOC M, COMIN-COLETB J. Adaptación transcultural al español del cuestionario Patient empowerment in long-term conditions. Aten Primaria 2019; 51: 24-31, https://doi.org/10.1016/j.aprim.2017.09.009
DELGADO JF, OLICA J, LLANO M, PASCUAL-FIGAL D, GRILLO JJ, COMÍN-COLET J et al. Costes sanitarios y no sanitarios de personas que padecen insuficiencia cardiaca crónica sintomática en España. Rev Esp Cardiol 2014; 67: 643-650. https://doi.org/10.1016/j.recesp.2013.12.016
CASTRO EM, VAN REGENMORTEL T, VANHAECHT K, SERMEUS W, VAN HECKE A. Patient empowerment, patient participation and patient-centeredness in hospital care: a concept analysis based on a literature review. Patient Educ Couns 2016; 99: 1923-1939. https://doi.org/10.1016/j.pec.2016.07.026
Declaration of Helsinki. Human experimentation code of ethics of the world medical association. Br Med J. 1964; 2: 177. https://doi.org/10.1136/bmj.2.5402.177
POLIT DF, BECK CT. Nursing Research. Principles and Methods. 8th ed. Philadelphia: Lippincott Williams & Wilkins, 2013.
CURRIE K, PATRICIA HS, SPALING M, HARKNESS K, BARBER D, CLARK AM. The importance of interactions between patients and healthcare professionals for heart failure self-care: A systematic review of qualitative research into patient perspectives. Eur J Cardiovasc Nurs 2015; 14: 525-35, https://doi.org/10.1177/1474515114547648
HEO S, LENNIE TA, PRESSLER SJ, DUNBAR SB, CHUNG ML, MOSER DK. Factors associated with perceived control and the relationship to quality of life in patients with heart failure. Eur J Cardiovasc Nurs 2015; 14: 137-144. https://doi.org/10.1177/1474515113519931
BANERJEE T, LEE KS, BROWNING SR, HOPENHAYN C, WESTNEAT S, BIDDLE MJ et al. Limited Association between perceived control and health- related quality of life in patients with heart failure. J. Cardiovasc Nurs 2014; 29: 227-231. https://doi.org/10.1097/JCN.0b013e31828b2b23
DRACUP K, WESTLAKE C, ERICKSON VS, MOSER DK, CALDWELL ML, HAMILTON MA. Perceived control reduces emotional stress in patients with heart failure. J. Heart Lung Transplant 2003; 22: 90-93. https://doi.org/10.1016/s1053-2498(02)00454-0
LIN CY, MILLER JL, LENNIE TA, BIDDLE MJ, MUDD-MARTIN G, HAMMASH M et al. perceived control predicts symptom status in patients with heart failure. J Cardiovasc Nurs 2020; 35: 530-537, https://doi.org/10.1097/JCN.0000000000000684
BARR PJ, SCHOLL I, BRAVO P, FABER MJ, ELWYN G, MCALLISTER M. Assessment of patient empowerment--a systematic review of measures. PLoS ONE 2015; 10: e0126553. https://doi.org/10.1371/journal.pone.0126553
WHO: World Health Organization 2020. WHOQOL: Measuring Quality of Life. https://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/
KÖHLER AK, TINGSTRÖM P, JAARSMA T, NILSSON S. Patient empowerment and general self-efficacy in patients with coronary heart disease: a cross-sectional study. BMC Fam Pract 2018; 19: 76, https://doi.org/10.1186/s12875-018-0749-y
FAULKNER M. A measure of patient empowerment in hospital environments catering for older people. J Adv Nurs 2001; 34: 676-686, https://doi.org/10.1046/j.1365-2648.2001.01797.x
SMALL N, BOWER P, CHEW-GRAHAM CA, WHALLEY D, PROTHEROE J. Patient empowerment in long-term conditions: development and preliminary testing of a new measure. BMC Health Serv Res 2013; 13: 263. https://doi.org/10.1186/1472-6963-13-263
FITZSIMONS D, STRACHAN PH. Overcoming the challenges of conducting research with people who have advanced heart failure and palliative care needs. Eur J Cardiovasc Nurs 2012; 11: 248-254. https://doi.org/10.1016/j.ejcnurse.2010.12.002
PÉREZ-PALOMA P, GONZÁLEZ-URMENETA I, RODA-CASADO C, VÁZQUEZ-CALATAYUD M. Una revisión sistemática de las intervenciones para empoderar al paciente con insuficiencia cardiaca crónica en el entorno hospitalario. An Sist Sanit Navar 2020; 43: 393-403 . https://doi.org/10.23938/ASSN.0925
Ministerio de Sanidad, Servicios Sociales e Igualdad. Gobierno de España. Estrategia para el abordaje de la cronicidad en el Sistema Nacional de Salud. Madrid: MSSSI, 2020 https://www.mscbs.gob.es/organizacion/sns/planCalidadSNS/pdf/ESTRATEGIA_ABORDAJE_CRONICIDAD.pdf
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