Desarrollo de una escala para conocer la experiencia de vivir con una insuficiencia cardíaca crónica: Escala UNAV-Experiencia de vivir con insuficiencia cardíaca crónica

Autores/as

  • Maribel Saracíbar-Razquin Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0001-5545-2563
  • Amparo Zaragoza-Salcedo Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0003-4438-9663
  • Jesús Martín-Martín Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0003-3795-8389
  • José Luis Cobo-Sanchez Nursing Quality https://orcid.org/0000-0003-3695-9216
  • Santiago Pérez-García Clínica Mompía. Mompía https://orcid.org/0000-0002-0716-9381
  • Aurora Simón-Ricart Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0002-7140-9087
  • Pilar Ara-Lucea Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0002-0932-8964
  • Leticia Jimeno-San Martín Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0003-1017-8091
  • Montserrat Ducay-Eguillor Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45
  • Noelia De La Torre-Lomas University Hospital 12 de Octubre. Cardiology Department. Madrid. Spain. https://ror.org/00qyh5r35
  • Jesica Pérez-Herreros Hospital Universitario Marqués de Valdecilla. Advanced Heart Failure and Heart Transplant Unit. Santander. Spain. https://ror.org/01w4yqf75
  • Maddi Olano-Lizarraga Universidad de NavarraUniversidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0002-8354-8367

DOI:

https://doi.org/10.23938/ASSN.1071

Palabras clave:

Insuficiencia cardíaca, Experiencias de Vida, Medición de Resultados, Informados por el Paciente

Resumen

Fundamento. A pesar de que la experiencia de vivir con insuficiencia cardiaca crónica (ICC) despierta gran interés entre el personal enfermero, no existen herramientas para explorar esta experiencia de forma sistemática. El objetivo de este estudio es desarrollar una escala para conocer la experiencia de vivir con ICC.

Métodos. El estudio se realizó entre enero de 2018 y diciembre de 2020 en tres hospitales españoles. Se aplicó la teoría de DeVellis para el desarrollo de una escala. Los ítems se formularon a partir de un estudio fenomenológico y de una revisión sistemática de la literatura. Tras la opinión del panel de expertos, se administró la escala a una muestra de pacientes con ICC y se generó la versión final de la escala tras realizar una entrevista cognitiva y un estudio observacional.

Resultados. La versión 1 de la escala constaba de siete dominios y 76 ítems. Tras la evaluación por el panel de expertos, la versión 2 se diseñó con seis dominios y 55 ítems. Tras su aplicación a 17 pacientes (58,8% varones, edad media 59,53 años, 70,6% clasificados como clase funcional II de la NYHA) se modificaron cinco ítems y se eliminaron dos, resultando la versión 3 de la Escala de Experiencia UNAV-CHF con seis dominios y un total de 53 ítems.

Conclusiones. Este estudio presenta el desarrollo de la Escala UNAV-Experiencia de vivir con ICC, instrumento original y novedoso que permite explorar esta experiencia de forma sistemática. Es necesario un estudio a mayor escala para confirmar su validez.

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Biografía del autor/a

Maribel Saracíbar-Razquin , Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain

 

PhD, RN. Professor Emeritus

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

Amparo Zaragoza-Salcedo , Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain

 

 

PhD, MSc, RN. Assistant Professor

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

Jesús Martín-Martín , Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain

 

PhD, MSc, RN. Assistant Professor.

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

José Luis Cobo-Sanchez , Nursing Quality

 

RN. Adjunct Professor

4- Nursing Quality, Training, Research, Development and Innovation Unit. Hospital Universitario Marqués de Valdecilla. Santander. Spain. https://ror.org/01w4yqf75

5- Instituto de Investigación Valdecilla (IDIVAL). Santander. Spain. https://ror.org/025gxrt12

6- Universidad Católica de Ávila. School of Nursing. Ávila. Spain. https://ror.org/05wa62164

Santiago Pérez-García , Clínica Mompía. Mompía

 

PhD, MSc, RN. Adjunct professor

7- Clínica Mompía. Mompía, Cantabria. Spain.

8- University Hospital 12 de Octubre. Nursing Research and Teaching. Madrid. Spain. https://ror.org/00qyh5r35

9- Care Research Group (InveCuid+12). Research Institute Hospital 12 de Octubre. Madrid. Spain. https://ror.org/002x1sg85

10- Complutense University. School of Nursing, Physiotherapy and Podiatry. Madrid. Spain. https://ror.org/02p0gd045

Aurora Simón-Ricart , Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

Pilar Ara-Lucea , Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

Leticia Jimeno-San Martín , Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

Montserrat Ducay-Eguillor , Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

Noelia De La Torre-Lomas , University Hospital 12 de Octubre. Cardiology Department. Madrid. Spain. https://ror.org/00qyh5r35

 

RN

University Hospital 12 de Octubre. Cardiology Department. Madrid. Spain. https://ror.org/00qyh5r35

Jesica Pérez-Herreros , Hospital Universitario Marqués de Valdecilla. Advanced Heart Failure and Heart Transplant Unit. Santander. Spain. https://ror.org/01w4yqf75

 

RN

Hospital Universitario Marqués de Valdecilla. Advanced Heart Failure and Heart Transplant Unit. Santander. Spain. https://ror.org/01w4yqf75

Maddi Olano-Lizarraga , Universidad de NavarraUniversidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain

 

PhD, MSc, RN. Associate Professor

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

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Publicado

2024-04-16

Cómo citar

Saracíbar-Razquin, M., Zaragoza-Salcedo, A., Martín-Martín, J., Cobo-Sanchez, J. L., Pérez-García, S., Simón-Ricart, A., Ara-Lucea, P., Jimeno-San Martín, L., Ducay-Eguillor, M. ., De La Torre-Lomas, N. ., Pérez-Herreros, J. ., & Olano-Lizarraga, M. (2024). Desarrollo de una escala para conocer la experiencia de vivir con una insuficiencia cardíaca crónica: Escala UNAV-Experiencia de vivir con insuficiencia cardíaca crónica. Anales Del Sistema Sanitario De Navarra, 47(1), e1071. https://doi.org/10.23938/ASSN.1071

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