Impacto de la enfermedad de Huntington en la familia
Palabras clave:
PALABRAS CLAVE, Trastornos Cognitivos. Terapia Familiar. Enfermedad de Huntington. Relación Intergeneracional. Trastornos del Movimiento. Relación Familia y Profesionales.Resumen
RESUMEN: En este artículo se describen las alteraciones estructurales y emocionales de las familias con uno o más miembros enfermos de Huntington, en función de los diferentes síntomas, del afectado (descendientes, progenitores) y de las diferentes etapas. Consideramos que los servicios de ayuda a la familia deben estar compuestos por profesionales expertos en las necesidades específicas de esta enfermedad y que deben ayudar a planificar y diseñar las ayudas de manera individual, adecuada y flexible. Esta ayuda debe centrarse en superar el impacto de la enfermedad, en proporcionar información relevante, en buscar soluciones prácticas, en dar apoyo emocional, en diseñar los cuidados necesarios en cada caso y etapa, y en disminuir el miedo al futuro.Descargas
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