The impact of Hungtinton’s disease on the family

Authors

  • M. Fernández Hawrylak UNIVERSIDAD DE BURGOS
  • C. Grau Rubio UNIVERSIDAD DE VALENCIA
  • P. Trigo Cubillo HOSPITAL RAMÓN Y CAJAL

Keywords:

PALABRAS CLAVE, Trastornos Cognitivos. Terapia Familiar. Enfermedad de Huntington. Relación Intergeneracional. Trastornos del Movimiento. Relación Familia y Profesionales.

Abstract

This article describes the structural and emotional disturbances in families with one or more members affected by Huntington’s disease, according to the different symptoms, the affected member (offspring, parent) and the different stages of the disease. We consider that support services to the family should be made up of professionals who are specialists in the specific needs of the disease and who should help to plan and design individual, suitable and flexible support. This support should focus on overcoming the impact of the disease, providing relevant information, seeking practical solutions, giving emotional support, designing specific care in each case and each stage, and reducing fear of the future.

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Published

2012-09-05

How to Cite

Fernández Hawrylak, M., Grau Rubio, C., & Trigo Cubillo, P. (2012). The impact of Hungtinton’s disease on the family. Anales Del Sistema Sanitario De Navarra, 35(2), 295–307. Retrieved from https://recyt.fecyt.es/index.php/ASSN/article/view/15548

Issue

Vol. 35 No. 2 (2012)

Section

Review article

License

Creative Commons License

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.

La revista Anales del Sistema Sanitario de Navarra es publicada por el Departamento de Salud del Gobierno de Navarra (España), quien conserva los derechos patrimoniales (copyright ) sobre el artículo publicado y favorece y permite la difusión del mismo bajo licencia Creative Commons Reconocimiento-CompartirIgual 4.0 Internacional (CC BY-SA 4.0). Esta licencia permite copiar, usar, difundir, transmitir y exponer públicamente el artículo, siempre que siempre que se cite la autoría y la publicación inicial en Anales del Sistema Sanitario de Navarra, y se distinga la existencia de esta licencia de uso.