Development of a scale to gain insight into the experience of living with chronic heart failure: The UNAV-Experience of Living with Chronic Heart Failure Scale

Egileak

  • Maribel Saracíbar-Razquin Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0001-5545-2563
  • Amparo Zaragoza-Salcedo Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0003-4438-9663
  • Jesús Martín-Martín Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0003-3795-8389
  • José Luis Cobo-Sanchez Nursing Quality https://orcid.org/0000-0003-3695-9216
  • Santiago Pérez-García Clínica Mompía. Mompía, Cantabria. Spain. https://orcid.org/0000-0002-0716-9381
  • Aurora Simón-Ricart Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0002-7140-9087
  • Pilar Ara-Lucea Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0002-0932-8964
  • Leticia Jimeno-San Martín Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45 https://orcid.org/0000-0003-1017-8091
  • Montserrat Ducay-Eguillor Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45
  • Noelia De La Torre-Lomas University Hospital 12 de Octubre. Cardiology Department. Madrid. Spain. https://ror.org/00qyh5r35
  • Jesica Pérez-Herreros Hospital Universitario Marqués de Valdecilla. Advanced Heart Failure and Heart Transplant Unit. Santander. Spain. https://ror.org/01w4yqf75
  • Maddi Olano-Lizarraga Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain https://orcid.org/0000-0002-8354-8367

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https://doi.org/10.23938/ASSN.1071

Gako-hitzak:

Heart failure, Scale, Life Experience., Patient-reported Outcomes.

Laburpena

Background. To date, there are no tools for the nursing staff to gain systematic insight on the experience lived by patients with chronic heart failure. The objective of this study was to develop a scale for this purpose.

Methods. The study was conducted between January 2018 and December 2020 in three Spanish hospitals. The process described by DeVellis was used for the development of the scale. The items were built based on a phenomenological study and a systematic review of the literature. Next, feedback from a panel of experts was obtained, the scale was administered to a sample of patients with chronic heart failure, and a cognitive interview and an observational study were conducted to create the final version of the scale.

Results. The first version of the scale had in seven domains and 76 items. After its evaluation by a panel of experts, it was reduced to a second version with six domains and 55 items. Following the administration of Version 2 to 17 patients (58.8% male, mean age 59.53, 70.6% classified as NYHA functional class II), five items were modified and two eliminated. Thus, the third version of the UNAV-CHF Experience Scale was composed of six domains and 53 items.

Conclusions. This study presents the development of the UNAV-experience of living with chronic heart failure scale. It is an original and novel instrument that allows systematically explore this experience. A larger-scale study is necessary to confirm the validity of our scale.

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##submission.authorBiographies##

##submission.authorWithAffiliation##

 

PhD, RN. Professor Emeritus

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

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PhD, MSc, RN. Assistant Professor

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

##submission.authorWithAffiliation##

 

PhD, MSc, RN. Assistant Professor.

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

##submission.authorWithAffiliation##

 

RN. Adjunct Professor

4- Nursing Quality, Training, Research, Development and Innovation Unit. Hospital Universitario Marqués de Valdecilla. Santander. Spain. https://ror.org/01w4yqf75

5- Instituto de Investigación Valdecilla (IDIVAL). Santander. Spain. https://ror.org/025gxrt12

6- Universidad Católica de Ávila. School of Nursing. Ávila. Spain. https://ror.org/05wa62164

##submission.authorWithAffiliation##

 

PhD, MSc, RN. Adjunct professor

7- Clínica Mompía. Mompía, Cantabria. Spain.

8- University Hospital 12 de Octubre. Nursing Research and Teaching. Madrid. Spain. https://ror.org/00qyh5r35

9- Care Research Group (InveCuid+12). Research Institute Hospital 12 de Octubre. Madrid. Spain. https://ror.org/002x1sg85

10- Complutense University. School of Nursing, Physiotherapy and Podiatry. Madrid. Spain. https://ror.org/02p0gd045

##submission.authorWithAffiliation##

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

##submission.authorWithAffiliation##

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

##submission.authorWithAffiliation##

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

##submission.authorWithAffiliation##

 

RN

Clínica Universidad de Navarra. Cardiology Department. Pamplona. Spain. https://ror.org/03phm3r45

##submission.authorWithAffiliation##

 

RN

University Hospital 12 de Octubre. Cardiology Department. Madrid. Spain. https://ror.org/00qyh5r35

##submission.authorWithAffiliation##

 

RN

Hospital Universitario Marqués de Valdecilla. Advanced Heart Failure and Heart Transplant Unit. Santander. Spain. https://ror.org/01w4yqf75

##submission.authorWithAffiliation##

 

PhD, MSc, RN. Associate Professor

1- Universidad de Navarra. School of Nursing. Department of Adult Nursing Care. Pamplona. Spain. https://ror.org/02rxc7m23

2- Universidad de Navarra. Innovation for a Person-Centred Care Research Group (ICCP-UNAV). Pamplona. Spain. https://ror.org/02rxc7m23

3- Navarra Institute for Health Research (IdiSNA). Pamplona. Spain. https://ror.org/023d5h353

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2024-04-16

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Saracíbar-Razquin, M., Zaragoza-Salcedo, A., Martín-Martín, J., Cobo-Sanchez, J. L., Pérez-García, S., Simón-Ricart, A., Ara-Lucea, P., Jimeno-San Martín, L., Ducay-Eguillor, M. ., De La Torre-Lomas, N. ., Pérez-Herreros, J. ., & Olano-Lizarraga, M. (2024). Development of a scale to gain insight into the experience of living with chronic heart failure: The UNAV-Experience of Living with Chronic Heart Failure Scale . Anales Del Sistema Sanitario De Navarra, 47(1), e1071. https://doi.org/10.23938/ASSN.1071

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