Experiences and changes in the parents of children with infant cerebral palsy: a qualitative study
Keywords:
Parálisis cerebral. Padres. Estudio cualitativo. Duelo.Abstract
Background: The diagnosis of Infant Cerebral Palsy (ICP) is a traumatic event that can provoke multiples effects and changes in the family. The objective of the study is to discover the difficulties that parents face in the process of parenting, specially soon after the birth. Method: A qualitative study was carried out through semi-structured interviews. 16 mothers and fathers whose children were diagnosed with cerebral palsy participated in the study. Data analysis was performed with the software Atlas.ti 6.2 following a strategy of open coding. Results: The reception of the diagnosis is perceived as an unexpected event that makes parents to change the expectations and hopes related to their children. The mode of relation with the child with ICP is different from other children, because parents are more focused on the possibility of improvement and the prognosis for the future. Changes in different aspects of life of these parents are shown, as the demands of time, the economical and labour situation, as well as the couple relationship. Conclusions: Have into account the problematic of the parents, specially soon after the diagnosis is vital in the attention to children with cerebral palsy. The process of parenting a child with cerebral palsy has many changes in the family so a global perspective is needed to organize the interventions.Downloads
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