Instruments for the assessment of the needs of family members of patients in intensive care units: a systematic review

Authors

  • M. Olano Lizarraga Universidad de Navarra
  • C.G. Vivar Universidad de Navarra

Keywords:

Familia. Necesidades. Unidad de Cuidados Intensivos. Cuestionario.

Abstract

The hospitalisation of a family member in an intensive care unit is a stressful event for the rest of the family members. During hospitalisation, the family suffers situations of fear, uncertainty and tiredness, and focuses on the medical evolution of their ill member. In this context, support and attention from health care professionals through the assessment of the needs of the family are crucial. There are different instruments for the assessment of a family´s needs. This systematic review aims to identify these questionnaires and to critically analyse their characteristics, so as to offer professionals valid and reliable questionnaires that they can use when caring for families in critical units.

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References

1. HUGHES F, BRYAN K, ROBBINS I. Relatives experiences of critical care. Nurs Crit Care 2005; 10 : 23-30.

https://doi.org/10.1111/j.1362-1017.2005.00091.x

2. MYHREN H, EKEBERG O, LANGEN I, STOKLAND O. Emotional strain, communication, and satisfaction of family members in the intensive care unit compared with expectations of the medical staff: experiences from a Norwegian University Hospital. Intensive Care Med 2004; 30: 1791-1798.

https://doi.org/10.1007/s00134-004-2375-5

3. POCHARD F, DARMON M, FASSIER T, et al. Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study. J Crit Care 2005; 20: 90-96.

https://doi.org/10.1016/j.jcrc.2004.11.004

4. COULTER MA. The needs of family members of patients in intensive care unit. Intensive Care Nurs 1989; 5: 4-10.

https://doi.org/10.1016/0266-612X(89)90034-5

5. JOHNSON D, WILSON M, CAVANAUGH B, BRYDEN C, GUDMUNDSON D, MOODLEY O. Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 1998; 26 : 266-271.

https://doi.org/10.1097/00003246-199802000-00023

6. FUERTES MC, MAYA MU. Atención a la familia: la atención familiar en situaciones concretas. An Sist Sanit Navar 2001; 24 : 83-92.

7. MARTÍN A, PÉREZ MA. Psychosocial adaptation in relatives of critically injured patients admitted to an intensive care unit. Span J Psychol 2005; 8: 36-44.

https://doi.org/10.1017/S1138741600004947

8. ALVAREZ GF, KIRBY AS. The perspective of families of the critically ill patient: their needs. Curr Oping Crit Care 2006; 12: 614-618.

https://doi.org/10.1097/MCC.0b013e328010c7ef

9. LESKE JS. Overview of family needs after critical illness: From assessment to intervention. AACN Clinical Issues 1991; 2 : 220-228.

https://doi.org/10.4037/15597768-1991-2006

10. PARDAVILA BELIO MI, VIVAR CG. Necesidades de la familia en las unidades de cuidados intensivos. Revisión de la literatura. Enferm Intensiva 2011; doi:10.1016/j.enfi.2011.06.001.

https://doi.org/10.1016/j.enfi.2011.06.001

11. LESKE JS. Needs of relatives of critically ill patients: A follow up. Heart Lung 1986; 15: 189-193.

12. QUINN S, REDMOND K, BEGLEY C. The needs of relatives visiting audit critical care units as perceived by relatives and nurses. Parts 1 & 2. Intensive Crit Care Nurs. 1996; 12: 168-172 & 12: 239-245.

https://doi.org/10.1016/S0964-3397(96)80148-0

13. GELLING L. Causes of ICU psychosis: the environmental factors. Nurs Crit Care 1999 ; 4: 22-26.

14. VOSBURGH D, SIMPSON P. Linking family theory and practice: a family nursing program. J Nurs Scholarsh 1993; 25: 231-235.

https://doi.org/10.1111/j.1547-5069.1993.tb00787.x

15. WESSON JS. Meeting the informational, psychosocial and emotional needs of each ICU patient and family. Intensive Crit Care Nurs 1997; 13: 111-118.

https://doi.org/10.1016/S0964-3397(97)80271-6

16. AL-HASSAN MA, HWEIDI IM. The perceived needs of Jordanian families of hospitalized critically ill patients. Int J Nurs Pract 2004; 10: 64-71.

https://doi.org/10.1111/j.1440-172X.2003.00460.x

17. KOSCO M, WARREN NA. Critical care nurses' perceptions of family needs as met. Crit Care Nurs Q 2002; 23: 60-72.

https://doi.org/10.1097/00002727-200008000-00008

18. NEABEL B, FOTHERGILL-BOURBONNAIS F, DUNNING J. Family assessment tools: A review of the literature from 1978-1997. Heart Lung 2000; 29: 196-209.

https://doi.org/10.1067/mhl.2000.106938

19. HARTRICK G, LINDSEY AE, HILLS M. Family nursing assessment: meeting the challenge of health promotion. J Adv Nurs 1994; 20: 85-91.

https://doi.org/10.1046/j.1365-2648.1994.20010085.x

20. CHIEN WT, CHIU YL, LAM LW, IP WY. Effects of a needs-based education programme for family carers with a relative in an intensive care unit: A quasi-experimental study. Int J Nurs Stud 2006; 43: 39-50.

https://doi.org/10.1016/j.ijnurstu.2005.01.006

21. LEUNG KK, CHIEN WT, MACKENZIE AE. Needs of Chinese families of critically ill patients. Western J Nurs Res 2000; 22: 826-840.

https://doi.org/10.1177/01939450022044782

22. MENDONCA D, WARREN NA. Perceived and unmet needs of critical care family members. Crit Care Nurs Q 1998; 21: 58-68.

https://doi.org/10.1097/00002727-199805000-00009

23. HOLOPAINEN A, HAKULINEN-VIITANEN T, TOSSAVAINEN K. Systematic review- a method for nursing research. Nurse Res 2008; 16: 72-83.

https://doi.org/10.7748/nr2008.10.16.1.72.c6754

24. STRAUS SE, GLASZIOU P, RICHARDSON WS, HAYNES RB. Evidence-based medicine. How to practice and teach EBM. 3rd ed.: Edinburgh: Churchill Livingston, 2005; 13-30.

25. SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK. A guideline developer's handbook. 2008. Disponible en: http://www.sign.ac.uk/pdf/sign50.pdf

26. CRITICAL APPRAISAL SKILLS PROGRAMME ESPAÑOL. 11 preguntas para entender un ensayo clínico y 10 preguntas para ayudarte a entender una revisión. Disponible en: http://www.redcaspe.org/que-hacemos/herramientas/

27. BERRA S, ELORZA-RICART JM, ESTRADA MD, SÁNCHEZ E. Instrumento para la lectura crítica y la evaluación de estudios epidemiológicos transversales. Gac Sanit 2008; 22: 492-497.

https://doi.org/10.1157/13126932

28. MOLTER NC. Needs of relatives of critically ill patients: A descriptive study. Heart Lung 1979; 8: 332-339.

29. HEYLAND DK, TRANMER J. Measuring family satisfaction with care in the intensive care unit: the development of a questionnaire and preliminary results. J Crit Care 2001; 16: 142-149.

https://doi.org/10.1053/jcrc.2001.30163

30. DOWLING J, VENDER J, GUILIANELLI S, WANG B. A Model of family-centered care and satisfaction predictors: the Critical Care Family Assistance Program. Chest 2005; 128: 81S-92S.

https://doi.org/10.1378/chest.128.3_suppl.81S

31. WASSER T, PASQUALE MA, MATCHETT SC, BRYAN Y, PASQUALE M. Establishing reliability and validity of the Critical Care Family Satisfaction Survey. Crit Care Med 2001; 29: 192-196.

https://doi.org/10.1097/00003246-200101000-00038

32. HOLDEN J, HARRISON L, JOHNSON M. Families, nurses and intensive care patients: a review of the literature. J Clin Nurs 2002; 11: 140-148.

https://doi.org/10.1046/j.1365-2702.2002.00581.x

33. PAUL F, RATTRAY J. Short- and long-term impact of critical illness on relatives: literature review. J Adv Nurs 2008; 62: 276-292.

https://doi.org/10.1111/j.1365-2648.2007.04568.x

34. VERHAEGHE S, DEFLOOR T, VAN ZUUREN F, DUIJNSTEE M, GRYPDONCK M. The needs and experiences of family members of adult patients in an intensive care unit: a review of the literature. J Clin Nurs 2005; 14: 501-509.

https://doi.org/10.1111/j.1365-2702.2004.01081.x

35. BURR G. Contextualizing critical care family needs through triangulation: an Australian study. Intensive Crit Care Nurs 1998; 14: 161-169.

https://doi.org/10.1016/S0964-3397(98)80473-4

36. LEE IYM, CHIEN WT, MACKENZIE A. Needs of families with a relative in a critical care unit in Hong Kong. J Clin Nurs 2000; 9: 46-54.

https://doi.org/10.1046/j.1365-2702.2000.00315.x

37. LESKE JS. Internal psychometric properties of the critical care family needs inventory. Heart & Lung 1991; 20: 236-244.

38. FREICHELS TA. Needs of family members of patients in the intensive care unit over time. Crit Care Nurs Q 1991; 14: 16-29.

https://doi.org/10.1097/00002727-199111000-00005

39. AUERBACH SM, KIESLER DJ, WARTELLA J, RAUSCH S, WARD KR, IVATURY R. Optimism, satisfaction with needs met, interpersonal perceptions of the healthcare team, and emotional distress in patients' family members during critical care hospitalization. Am J Crit Care 2005; 14: 202-210.

https://doi.org/10.4037/ajcc2005.14.3.202

40. SANTANA FREITAS K, KIMURA M, SÃO LEÃO FERREIRA KA. Family members' needs at intensive care units: comparative analysis between a public and a private hospital. Revista Latino-americana Enfermagem 2007; 15: 84-92.

https://doi.org/10.1590/S0104-11692007000100013

41. BIJTTEBIER P, VANOOST S, DELVA D, FERDINANDE P, FRANS E. Needs of relatives of critical care patients: perceptions of relatives, physicians and nurses. Intensive Care Med 2001; 27: 160-165.

https://doi.org/10.1007/s001340000750

42. DAMGHI N, KHOUDRI I, OUALILI L, ABIDI K, MADANI N, ALI ZEGGWAGH A, ABOUQAL R. Measuring the satisfaction of intensive care unit patient families in Morocco: A regression tree analysis. Crit Care Med 2008; 36: 2084-2091.

https://doi.org/10.1097/CCM.0b013e31817c104e

43. HEYLAND DK, ROCKER GM, DODECK PM, KUTSOGIANNIS DJ, KONOPAD E, COOK DJ, PETERS S, TRANMER JE, O'CALLAGHAN CJ. Family satisfaction with care in the intensive care unit: Results of the multiple center study. Crit Care Med 2002; 30: 1413-1418.

https://doi.org/10.1097/00003246-200207000-00002

44. LEE LYK, LAU YL. Immediate needs of adult family members of adult intensive care patients in Hong Kong. J Clin Nurs 2003; 12: 490-500.

https://doi.org/10.1046/j.1365-2702.2003.00743.x

45. MAXWELL KE, STUENKEL D, SAYLOR C. Needs of family members of critically ill patients: A comparison of nurse and family perceptions. Heart Lung 2007; 36: 367-376.

https://doi.org/10.1016/j.hrtlng.2007.02.005

46. OMARI FH. Perceived and Unmet Needs of Adult Jordanian Family Members of Patients in ICUs. J Nurs Scholarsh 2009; 41: 28-34.

https://doi.org/10.1111/j.1547-5069.2009.01248.x

47. STRICKER KH, KIMBERGER O, SCHMIDLIN K, ZWAHLEN M, MOHR U, ROTHEN HU. Family satisfaction in the intensive care unit: what makes the difference? Intensive Care Med 2009; 35: 2051-2059.

https://doi.org/10.1007/s00134-009-1611-4

48. WALL RJ, CURTIS R, COOKE CR, ENGELBERG RA. Family satisfaction in the ICU: Differences between families of survivors and nonsurvivors. Chest 2007; 132: 1425-1433.

https://doi.org/10.1378/chest.07-0419

49. WALL RJ, ENGELBERG RA, DOWNEY L, HEYLAND DK, CURTIS JR. Refinement, scoring, and validation of the Family Satisfaction in the Intensive Care Unit (FS-ICU) survey. Crit Care Med 2007; 35: 271-279.

https://doi.org/10.1097/01.CCM.0000251122.15053.50

50. WARREN NA. Perceived needs of the family members in the critical care waiting room. Crit Care Nurs Q 1993; 16: 56-63.

https://doi.org/10.1097/00002727-199311000-00009

51. YURSS I. Atención a la familia: otra forma de enfocar los problemas de salud en atención primaria. Instrumentos de abordaje familiar. An Sist Sanit Navar 2001; 24: 73-82.

Published

2012-05-02

How to Cite

1.
Olano Lizarraga M, Vivar C. Instruments for the assessment of the needs of family members of patients in intensive care units: a systematic review. An Sist Sanit Navar [Internet]. 2012 May 2 [cited 2025 Dec. 5];35(1):53-67. Available from: https://recyt.fecyt.es/index.php/ASSN/article/view/13717

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Review article

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