Instrumentos para la valoración de las necesidades de los familiares de pacientes ingresados en cuidados intensivos: una revisión sistemática
Palabras clave:
Familia. Necesidades. Unidad de Cuidados Intensivos. Cuestionario.Resumen
El ingreso de un familiar en una unidad de cuidados intensivos es un evento estresante para los miembros de la familia. Durante ese periodo, la familia padece situaciones de miedo, incertidumbre y cansancio, y dedica toda su atención a la evolución del familiar ingresado. En ese contexto, resulta imprescindible el apoyo y la atención por parte de los profesionales sanitarios mediante la valoración de las necesidades propias de la familia. Existen diversos instrumentos creados para la valoración de dichas necesidades. A través de esta revisión sistemática, se pretende identificar cuáles son esos cuestionarios y analizar críticamente sus características para ofrecer a los profesionales que trabajan en áreas de críticos unos cuestionarios válidos y fiables que puedan utilizar en el abordaje a las familias.Descargas
Citas
1. HUGHES F, BRYAN K, ROBBINS I. Relatives experiences of critical care. Nurs Crit Care 2005; 10 : 23-30.
https://doi.org/10.1111/j.1362-1017.2005.00091.x
2. MYHREN H, EKEBERG O, LANGEN I, STOKLAND O. Emotional strain, communication, and satisfaction of family members in the intensive care unit compared with expectations of the medical staff: experiences from a Norwegian University Hospital. Intensive Care Med 2004; 30: 1791-1798.
https://doi.org/10.1007/s00134-004-2375-5
3. POCHARD F, DARMON M, FASSIER T, et al. Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study. J Crit Care 2005; 20: 90-96.
https://doi.org/10.1016/j.jcrc.2004.11.004
4. COULTER MA. The needs of family members of patients in intensive care unit. Intensive Care Nurs 1989; 5: 4-10.
https://doi.org/10.1016/0266-612X(89)90034-5
5. JOHNSON D, WILSON M, CAVANAUGH B, BRYDEN C, GUDMUNDSON D, MOODLEY O. Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 1998; 26 : 266-271.
https://doi.org/10.1097/00003246-199802000-00023
6. FUERTES MC, MAYA MU. Atención a la familia: la atención familiar en situaciones concretas. An Sist Sanit Navar 2001; 24 : 83-92.
7. MARTÍN A, PÉREZ MA. Psychosocial adaptation in relatives of critically injured patients admitted to an intensive care unit. Span J Psychol 2005; 8: 36-44.
https://doi.org/10.1017/S1138741600004947
8. ALVAREZ GF, KIRBY AS. The perspective of families of the critically ill patient: their needs. Curr Oping Crit Care 2006; 12: 614-618.
https://doi.org/10.1097/MCC.0b013e328010c7ef
9. LESKE JS. Overview of family needs after critical illness: From assessment to intervention. AACN Clinical Issues 1991; 2 : 220-228.
https://doi.org/10.4037/15597768-1991-2006
10. PARDAVILA BELIO MI, VIVAR CG. Necesidades de la familia en las unidades de cuidados intensivos. Revisión de la literatura. Enferm Intensiva 2011; doi:10.1016/j.enfi.2011.06.001.
https://doi.org/10.1016/j.enfi.2011.06.001
11. LESKE JS. Needs of relatives of critically ill patients: A follow up. Heart Lung 1986; 15: 189-193.
12. QUINN S, REDMOND K, BEGLEY C. The needs of relatives visiting audit critical care units as perceived by relatives and nurses. Parts 1 & 2. Intensive Crit Care Nurs. 1996; 12: 168-172 & 12: 239-245.
https://doi.org/10.1016/S0964-3397(96)80148-0
13. GELLING L. Causes of ICU psychosis: the environmental factors. Nurs Crit Care 1999 ; 4: 22-26.
14. VOSBURGH D, SIMPSON P. Linking family theory and practice: a family nursing program. J Nurs Scholarsh 1993; 25: 231-235.
https://doi.org/10.1111/j.1547-5069.1993.tb00787.x
15. WESSON JS. Meeting the informational, psychosocial and emotional needs of each ICU patient and family. Intensive Crit Care Nurs 1997; 13: 111-118.
https://doi.org/10.1016/S0964-3397(97)80271-6
16. AL-HASSAN MA, HWEIDI IM. The perceived needs of Jordanian families of hospitalized critically ill patients. Int J Nurs Pract 2004; 10: 64-71.
https://doi.org/10.1111/j.1440-172X.2003.00460.x
17. KOSCO M, WARREN NA. Critical care nurses' perceptions of family needs as met. Crit Care Nurs Q 2002; 23: 60-72.
https://doi.org/10.1097/00002727-200008000-00008
18. NEABEL B, FOTHERGILL-BOURBONNAIS F, DUNNING J. Family assessment tools: A review of the literature from 1978-1997. Heart Lung 2000; 29: 196-209.
https://doi.org/10.1067/mhl.2000.106938
19. HARTRICK G, LINDSEY AE, HILLS M. Family nursing assessment: meeting the challenge of health promotion. J Adv Nurs 1994; 20: 85-91.
https://doi.org/10.1046/j.1365-2648.1994.20010085.x
20. CHIEN WT, CHIU YL, LAM LW, IP WY. Effects of a needs-based education programme for family carers with a relative in an intensive care unit: A quasi-experimental study. Int J Nurs Stud 2006; 43: 39-50.
https://doi.org/10.1016/j.ijnurstu.2005.01.006
21. LEUNG KK, CHIEN WT, MACKENZIE AE. Needs of Chinese families of critically ill patients. Western J Nurs Res 2000; 22: 826-840.
https://doi.org/10.1177/01939450022044782
22. MENDONCA D, WARREN NA. Perceived and unmet needs of critical care family members. Crit Care Nurs Q 1998; 21: 58-68.
https://doi.org/10.1097/00002727-199805000-00009
23. HOLOPAINEN A, HAKULINEN-VIITANEN T, TOSSAVAINEN K. Systematic review- a method for nursing research. Nurse Res 2008; 16: 72-83.
https://doi.org/10.7748/nr2008.10.16.1.72.c6754
24. STRAUS SE, GLASZIOU P, RICHARDSON WS, HAYNES RB. Evidence-based medicine. How to practice and teach EBM. 3rd ed.: Edinburgh: Churchill Livingston, 2005; 13-30.
25. SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK. A guideline developer's handbook. 2008. Disponible en: http://www.sign.ac.uk/pdf/sign50.pdf
26. CRITICAL APPRAISAL SKILLS PROGRAMME ESPAÑOL. 11 preguntas para entender un ensayo clínico y 10 preguntas para ayudarte a entender una revisión. Disponible en: http://www.redcaspe.org/que-hacemos/herramientas/
27. BERRA S, ELORZA-RICART JM, ESTRADA MD, SÁNCHEZ E. Instrumento para la lectura crítica y la evaluación de estudios epidemiológicos transversales. Gac Sanit 2008; 22: 492-497.
https://doi.org/10.1157/13126932
28. MOLTER NC. Needs of relatives of critically ill patients: A descriptive study. Heart Lung 1979; 8: 332-339.
29. HEYLAND DK, TRANMER J. Measuring family satisfaction with care in the intensive care unit: the development of a questionnaire and preliminary results. J Crit Care 2001; 16: 142-149.
https://doi.org/10.1053/jcrc.2001.30163
30. DOWLING J, VENDER J, GUILIANELLI S, WANG B. A Model of family-centered care and satisfaction predictors: the Critical Care Family Assistance Program. Chest 2005; 128: 81S-92S.
https://doi.org/10.1378/chest.128.3_suppl.81S
31. WASSER T, PASQUALE MA, MATCHETT SC, BRYAN Y, PASQUALE M. Establishing reliability and validity of the Critical Care Family Satisfaction Survey. Crit Care Med 2001; 29: 192-196.
https://doi.org/10.1097/00003246-200101000-00038
32. HOLDEN J, HARRISON L, JOHNSON M. Families, nurses and intensive care patients: a review of the literature. J Clin Nurs 2002; 11: 140-148.
https://doi.org/10.1046/j.1365-2702.2002.00581.x
33. PAUL F, RATTRAY J. Short- and long-term impact of critical illness on relatives: literature review. J Adv Nurs 2008; 62: 276-292.
https://doi.org/10.1111/j.1365-2648.2007.04568.x
34. VERHAEGHE S, DEFLOOR T, VAN ZUUREN F, DUIJNSTEE M, GRYPDONCK M. The needs and experiences of family members of adult patients in an intensive care unit: a review of the literature. J Clin Nurs 2005; 14: 501-509.
https://doi.org/10.1111/j.1365-2702.2004.01081.x
35. BURR G. Contextualizing critical care family needs through triangulation: an Australian study. Intensive Crit Care Nurs 1998; 14: 161-169.
https://doi.org/10.1016/S0964-3397(98)80473-4
36. LEE IYM, CHIEN WT, MACKENZIE A. Needs of families with a relative in a critical care unit in Hong Kong. J Clin Nurs 2000; 9: 46-54.
https://doi.org/10.1046/j.1365-2702.2000.00315.x
37. LESKE JS. Internal psychometric properties of the critical care family needs inventory. Heart & Lung 1991; 20: 236-244.
38. FREICHELS TA. Needs of family members of patients in the intensive care unit over time. Crit Care Nurs Q 1991; 14: 16-29.
https://doi.org/10.1097/00002727-199111000-00005
39. AUERBACH SM, KIESLER DJ, WARTELLA J, RAUSCH S, WARD KR, IVATURY R. Optimism, satisfaction with needs met, interpersonal perceptions of the healthcare team, and emotional distress in patients' family members during critical care hospitalization. Am J Crit Care 2005; 14: 202-210.
https://doi.org/10.4037/ajcc2005.14.3.202
40. SANTANA FREITAS K, KIMURA M, SÃO LEÃO FERREIRA KA. Family members' needs at intensive care units: comparative analysis between a public and a private hospital. Revista Latino-americana Enfermagem 2007; 15: 84-92.
https://doi.org/10.1590/S0104-11692007000100013
41. BIJTTEBIER P, VANOOST S, DELVA D, FERDINANDE P, FRANS E. Needs of relatives of critical care patients: perceptions of relatives, physicians and nurses. Intensive Care Med 2001; 27: 160-165.
https://doi.org/10.1007/s001340000750
42. DAMGHI N, KHOUDRI I, OUALILI L, ABIDI K, MADANI N, ALI ZEGGWAGH A, ABOUQAL R. Measuring the satisfaction of intensive care unit patient families in Morocco: A regression tree analysis. Crit Care Med 2008; 36: 2084-2091.
https://doi.org/10.1097/CCM.0b013e31817c104e
43. HEYLAND DK, ROCKER GM, DODECK PM, KUTSOGIANNIS DJ, KONOPAD E, COOK DJ, PETERS S, TRANMER JE, O'CALLAGHAN CJ. Family satisfaction with care in the intensive care unit: Results of the multiple center study. Crit Care Med 2002; 30: 1413-1418.
https://doi.org/10.1097/00003246-200207000-00002
44. LEE LYK, LAU YL. Immediate needs of adult family members of adult intensive care patients in Hong Kong. J Clin Nurs 2003; 12: 490-500.
https://doi.org/10.1046/j.1365-2702.2003.00743.x
45. MAXWELL KE, STUENKEL D, SAYLOR C. Needs of family members of critically ill patients: A comparison of nurse and family perceptions. Heart Lung 2007; 36: 367-376.
https://doi.org/10.1016/j.hrtlng.2007.02.005
46. OMARI FH. Perceived and Unmet Needs of Adult Jordanian Family Members of Patients in ICUs. J Nurs Scholarsh 2009; 41: 28-34.
https://doi.org/10.1111/j.1547-5069.2009.01248.x
47. STRICKER KH, KIMBERGER O, SCHMIDLIN K, ZWAHLEN M, MOHR U, ROTHEN HU. Family satisfaction in the intensive care unit: what makes the difference? Intensive Care Med 2009; 35: 2051-2059.
https://doi.org/10.1007/s00134-009-1611-4
48. WALL RJ, CURTIS R, COOKE CR, ENGELBERG RA. Family satisfaction in the ICU: Differences between families of survivors and nonsurvivors. Chest 2007; 132: 1425-1433.
https://doi.org/10.1378/chest.07-0419
49. WALL RJ, ENGELBERG RA, DOWNEY L, HEYLAND DK, CURTIS JR. Refinement, scoring, and validation of the Family Satisfaction in the Intensive Care Unit (FS-ICU) survey. Crit Care Med 2007; 35: 271-279.
https://doi.org/10.1097/01.CCM.0000251122.15053.50
50. WARREN NA. Perceived needs of the family members in the critical care waiting room. Crit Care Nurs Q 1993; 16: 56-63.
https://doi.org/10.1097/00002727-199311000-00009
51. YURSS I. Atención a la familia: otra forma de enfocar los problemas de salud en atención primaria. Instrumentos de abordaje familiar. An Sist Sanit Navar 2001; 24: 73-82.
Publicado
Cómo citar
Número
Sección
Licencia
Derechos de autor 2012 Anales del Sistema Sanitario de Navarra

Esta obra está bajo una licencia internacional Creative Commons Atribución-CompartirIgual 4.0.
La revista Anales del Sistema Sanitario de Navarra es publicada por el Departamento de Salud del Gobierno de Navarra (España), quien conserva los derechos patrimoniales (copyright ) sobre el artículo publicado y favorece y permite la difusión del mismo bajo licencia Creative Commons Reconocimiento-CompartirIgual 4.0 Internacional (CC BY-SA 4.0). Esta licencia permite copiar, usar, difundir, transmitir y exponer públicamente el artículo, siempre que siempre que se cite la autoría y la publicación inicial en Anales del Sistema Sanitario de Navarra, y se distinga la existencia de esta licencia de uso.


