On-line resources in dealing with rare diseases

Authors

  • L Aldamiz-Echevarría Unidad de Metabolismo, Hospital de Cruces
  • J.A Prieto
  • M.L Couce
  • D González Lamuño

Keywords:

Portales web. Enfermedades raras. Informática

Abstract

The increase in scientific knowledge and the need for its transmission to health professionals and patients has resulted in the creation of websites as a useful tool. In low prevalence diseases, such as rare diseases (RDs), sites are being created by scientific societies, institutions and patients. This section reviews the most important websites dealing with RDs both nationally and internationally

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Published

2008-10-07

How to Cite

1.
Aldamiz-Echevarría L, Prieto J, Couce M, González Lamuño D. On-line resources in dealing with rare diseases. An Sist Sanit Navar [Internet]. 2008 Oct. 7 [cited 2026 Feb. 2];31:145-52. Available from: https://recyt.fecyt.es/index.php/ASSN/article/view/1971

Issue

Section

Research articles

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