Occupational balance, disability and functionality in people with rheumatic disease
DOI:
https://doi.org/10.23938/ASSN.1053Keywords:
Occupational Balance, Disability, Functionality, Rheumatic DiseaseAbstract
Background. We aimed to assess the occupational balance of people with rheumatic disease, analyze its relationship with participation, performance, and satisfaction with daily life activities, and evaluate whether age or receiving non-pharmacological treatment affects the outcome.
Methods. Cross-sectional study carried out between March and November 2021; patients with non-advanced stage of rheumatic disease from the ConArtritis Association - selected through simple random sampling -, were included. Sociodemographic data and scores from the OBQ, IMPACT-S, COPM questionnaires, and a questionnaire created ad hoc for daily life activities were collected online and/or by telephone.
Results. The occupational balance of the 47 participants was low (OBQ: 34.2; SD: 13.7). Despite a high participation in daily life activities (IMPACT-S: 76.8; SD: 13.1), the degree of performance and satisfaction with these activities was far from optimal (COPM-R: 3.9; SD: 2.0 and COPM-S: 4.3; SD: 2.5); 46.8% of the participants found limitations in at least four daily life activities (basic and instrumental) and 61.7% used at least one support product in their daily lives. These limitations reduced their resting time and affected their jobs, hobbies, and personal relationships. The level of performance was negatively related to age (p=0.04); No changes in the scores were found in patients who received non-pharmacological treatment.
Conclusion. Our results suggest that individuals with non-advanced stage of a rheumatic disease perceive that their occupational balance may be improved should they have fewer limitations in daily life activities.
Downloads
References
PHANG JK, KWAN YH, GOH H, TAN VIC, THUMBOO J, ØSTBYE T et al. Complementary and alternative medicine for rheumatic diseases: A systematic review of randomized controlled trials. Complement Ther Med 2018; 37: 143-157. https://doi.org/10.1016/j.ctim.2018.03.003
SANGHA O. Epidemiology of rheumatic diseases. Rheumatology (Oxford) 2000; 39(Suppl 2): 3-12. https://doi.org/10.1093/rheumatology/39.suppl_2.3
Grupo Cientffico de Ia OMS en Enfermedades Reumaticas. Enfermedades reumaticas: informe de un grupo cientifico de Ia OMS. OMS, Serie de informes técnicos; 816. Ginebra: OMS, 1992. https://apps.who.int/iris/bitstream/handle/10665/39682/9243208160_spa.pdf?sequence=1&isAllowed=y
CARMONA L, LOZA E. Epidemiología. Dossier de prensa de la Sociedad Española de Reumatología, 2015; https://www.ser.es/wp-content/uploads/2015/09/Epidemiologia.pdf
STEULTJENS EMJ, DEKKER J, BOUTER LM, VAN SCHAARDENBURG D, VAN KUYK MAH, VAN DEN ENDE CHM. Occupational therapy for rheumatoid arthritis. Cochrane Database Syst Rev 2004; 2004(1): CD003114. https://doi.org/10.1002/14651858.CD003114.pub2
ROLL SC, HARDISON ME. Effectiveness of occupational therapy interventions for adults with musculoskeletal conditions of the forearm, wrist, and hand: A systematic review. Am J Occup Ther 2017; 71(1): 7101180010p1-7101180010p12. https://doi.org/10.5014/ajot.2017.023234
Marco de trabajo para la práctica de terapia ocupacional. Dominio y proceso.. Adaptación al español del documento: American Occupational Therapy Asociation. Occupational therapy practice framework: Domain and process. Am J Occup Ther 2008; 62: 625-683. Traducción coordinada por Mercado Padín R y Ramírez Ríos A, 2010. https://www.cptopr.org/Documents/Traduccion_FINAL_OTPF_2_PR.pdf
STAMM T, WRIGHT J, MACHOLD K, SADLO G, SMOLEN J. Occupational balance of women with rheumatoid arthritis: A qualitative study. Musculoskeletal Care 2004; 2(2): 101-112. https://doi.org/10.1002/msc.62
WAGMAN P, AHLSTRAND I, BJÖRK M, HÅKANSSON C. Occupational balance and its association with life satisfaction in men and women with rheumatoid arthritis. Musculoskeletal Care 2020; 18(2): 187-194. https://doi.org/10.1002/msc.1454
EKELMAN BA, HOOKER L, DAVIS A, KLAN J, NEWBURN D, DETWILER K et al. Occupational therapy interventions for adults with rheumatoid arthritis: An appraisal of the evidence. Occup Ther Health Care 2014; 28(4): 347-361 https://doi.org/10.3109/07380577.2014.919687
PERAL GÓMEZ P, LÓPEZ S, PASTOR MA, ABAD E, VALERA D, HÁKANSSON C et al. Cultural adaptation and psychometric properties of the spanish version of the occupational balance questionnaire: an instrument for occupation-based research. Int J Environ Res Public Health 2021; 18(14): 7506. https://doi.org/10.3390/ijerph18147506
POST MWM, DE WITTE LP, REICHRATH E, VERDONSCHOT MM, WIJLHUIZEN GJ, PERENBOOM RJM. Development and validation of impact-s, an ICF-based questionnaire to measure activities and participation. J Rehabil Med 2008; 40(8): 620-627. https://doi.org/10.2340/16501977-0223
EYSSEN ICJM, STEULTJENS MPM, OUD TAM, BOL EM, MAASDAM A, DEKKER J. Responsiveness of the Canadian Occupational Performance Measure. J Rehabil Res Dev 2011; 48(5): 517-528. https://doi.org/10.1682/jrrd.2010.06.0110
SARABIA CM, ALCONERO AR. Claves para el diseño y validación de cuestionarios en Ciencias de la Salud. Enferm Cardiol 2019; 77: 69-73. https://enfermeriaencardiologia.com/media/acfupload/627a2069dc5b2_Enferm-Cardiol.-2019-26-77-Art_1-1.pdf
GRAY BH, COOKE RA, TANNENBAUM AS. Research involving human subjects. Science 1978; 201(4361): 1094-1101. https://doi.org/10.1126/science.356268
WAGMAN P, HÅKANSSON C, BJÖRKLUND A. Occupational balance as used in occupational therapy: A concept analysis. Scand J Occup Ther 2012; 19(4): 322-327. https://doi.org/10.3109/11038128.2011.596219
KATZ PP, MORRIS A, YELIN EH. Prevalence and predictors of disability in valued life activities among individuals with rheumatoid arthritis. Ann Rheum Dis 2006; 65(6): 763-769. https://doi.org/10.1136/ard.2005.044677
AHLSTRAND I, BJÖRK M, THYBERG I, BÖRSBO B, FALKMER T. Pain and daily activities in rheumatoid arthritis. Disabil Rehabil 2012; 34(15): 1245-1253. https://doi.org/10.3109/09638288.2011.638034
FEEHAN LM, LU N, XIE H, LI LC. Twenty-four hour-activity and sleep profiles for adults living with arthritis: Habits matter. Arthritis Care Res Hoboken 2020; 72(12): 1678-1686. https://doi.org/10.1002/acr.24424
MA KS, MARIA M, RALDA I, VEERAVALLI JJ, WANG L, THOTA E et al. Patients with juvenile idiopathic arthritis are at increased risk for obstructive sleep apnoea: A population-based cohort study. Eur J Orthod 2022; 44(2): 226-231. https://doi.org/10.1093/ejo/cjab050
MACEDO AM, OAKLEY SP, PANAYI GS, KIRKHAM BW. Functional and work outcomes improve in patients with rheumatoid arthritis who receive targeted, comprehensive occupational therapy. Arthritis Care Res 2009; 61(11): 1522-1530. https://doi.org/10.1002/art.24563
MADSEN CMT, CHRISTENSEN JR, BREMANDER A, PRIMDAHL J. Perceived challenges at work and need for professional support among people with inflammatory arthritis - a qualitative interview study. Scand J Occup Ther 2023; 30(5): 640-649. https://doi.org/10.1080/11038128.2021.1989483
PAPAKONSTANTINOU D. Work disability and rheumatoid arthritis: Predictive factors. Work 2021; 69(4): 1293-1304. https://doi.org/10.3233/WOR-213550
BERGSTRÖM M, SVERKER A, LARSSON RANADA Å, VALTERSSON E, THYBERG I, ÖSTLUND G et al. Significant others’ influence on participation in everyday life-the perspectives of persons with early diagnosed rheumatoid arthritis. Disabil Rehabil 2020; 42(3): 385-393.https://doi.org/10.1080/09638288.2018.1499825
NIKIPHOROU E, RAMIRO S, VAN DER HEIJDE D, NORTON S, MOLTÓ A, DOUGADOS M et al. Association of comorbidities in spondyloarthritis with poor function, work disability, and quality of life: results from the assessment of SpondyloArthritis International Society Comorbidities in Spondyloarthritis study. Arthritis Care Res 2018; 70(8): 1257-1562. https://doi.org/10.1002/acr.23468
TONGA E, DÜGER T, KARATAŞ M. Effectiveness of client-centered occupational therapy in patients with rheumatoid arthritis: Exploratory randomized controlled trial. Arch Rheumatol 2016; 31(1): 6-13. https://doi.org/10.5606/ArchRheumatol.2016.5478
REINSETH L, KJEKEN I, UHLIG T, ESPNES G. Participation in committed and discretionary activities and quality of life in women with rheumatoid arthritis. Br J Occup Ther 2012; 75(7): 313-320. https://doi.org/10.4276/030802212x13418284515794
Downloads
Published
How to Cite
Issue
Section
License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
La revista Anales del Sistema Sanitario de Navarra es publicada por el Departamento de Salud del Gobierno de Navarra (España), quien conserva los derechos patrimoniales (copyright ) sobre el artículo publicado y favorece y permite la difusión del mismo bajo licencia Creative Commons Reconocimiento-CompartirIgual 4.0 Internacional (CC BY-SA 4.0). Esta licencia permite copiar, usar, difundir, transmitir y exponer públicamente el artículo, siempre que siempre que se cite la autoría y la publicación inicial en Anales del Sistema Sanitario de Navarra, y se distinga la existencia de esta licencia de uso.