Weaving together struggles for the right to education: collective and personal narratives for inclusion from the social model of disability
DOI:
https://doi.org/10.7179/PSRI_2022.41.03Keywords:
disability, disability discrimination, inclusive education, human rights, human diversityAbstract
This paper aims to question and contribute to the transformation of those cultures, policies and educational practices that lead schools to exclude some students by devaluing
differences. With this intention, we have collated a series of stories and collective narratives that address human diversity and the right to inclusive education. They allow us
to escape the new frontiers of normality, creating vital and social cartographies motivated by
desire for change. The methodology used combines participatory action-research processes with biographical and narrative research. The scope of the project, combined with these
processes, allow us to understand the daily and complex constructions as well as the collaborative mechanisms put into practice by teachers, students and activist families who seek
recognition of all kinds of abilities in schools. The stories are intertwined and build upon each other, promoting knowledge and actions that draw upon difficult experiences, usually made
invisible by the institution. These actions are full of emotion to promote social movements and educational changes. Likewise, the results obtained show that the formation of networks
of mutual support and resistance favor resilience processes, pointing towards structural transformations and act for the benefit of all people in schools.
Downloads
References
Ainscow, M. (2003). Desarrollo de Sistemas Educativos Inclusivos. Ponencia presentada en San Sebastián, octubre de 2003. https://bit.ly/38t1DDE
Apple, M. W. (2013). Can education change society? Nueva York: Routledge.
Asís, R., Campoy, I. & Bengoechea, M. A. (2007). Derecho a la igualdad y a la diferencia. Análisis de los principios de no discriminación, diversidad y acción positiva. En De Lorenzo, R. y Pérez, L. C., Tratado sobre discapacidad (pp.115-142). Madrid: Thomson/Aranzadi.
Barnes, C. (1996). Disability and the Myth of the Independent Researcher. Disability & Society, 11(1), 107-112. https://doi.org/10.1080/09687599650023362
Bertaux, D. (1981). Biography and Society. London: Sage.
Booth, T. (1998). El sonido de las voces acalladas: cuestiones acerca del uso de los métodos narrativos con personas con dificultades de aprendizaje. En L. Barton (Comp.), Discapacidad y sociedad (pp. 253-272). Madrid: Morata.
Brydon-Miller, M. & Maguire, P. (2009). Participatory Action Research: Contributions to the Development of Practitioner Inquiry in Education. Educational Action Research, 17(1), 79-93. https://doi.org/10.1080/09650790802667469
Bruner, J. (1991). Actos de significado. Más allá de la revolución cognitiva. Madrid: Alianza Editorial.
Calderón, I. & Calderón, R. (2016). ‘I open the coffin and here I am.’ Disability as oppression and education as liberation in the construction of personal identity. Disability & Society, 31(1), 100-115. https://doi.org/10.1080/09687599.2015.1133400
Calderón, I. & Echeita, G. (2016). Desafíos ineludibles para la construcción de escuelas inclusivas. Dosier Graó, 1, 35-41.
Calderón, I. & Rascón, M. T. (Coords.)(2020). Análisis y propuestas para una nueva Ley Educativa. Conversaciones de la ciudadanía sobre la escuela inclusiva. Octaedro: Barcelona. https://bit.ly/3PICTIi
Calderón, I.; Mojtar, L.; Cabello, F. & Colectivo ‘Estudiantes por la Inclusión’ (2021). Cómo hacer inclusiva tu escuela. Ministerio de Educación y Formación Profesional, Madrid. https://bit.ly/3M0aevo
Calderón, I. (2018). Deprived of human rights. Disability & Society, 33(10), 1666-1671. https://doi.org/10.1080/09687599.2018.1529260
Calderón, I. & Ruiz, C. (2015). Education as liberation from oppression: personal and social constructions of Disability. In Kiuppis, F. & Sarromaa Hausstätter, R. (Eds.), Inclusive education twenty years after Salamanca (pp. 251-260). New York: Peter Lang.
Calleja, A., Calderón, I. & Ruiz, C. (2015). Terminar con el apartheid educativo. Cuadernos de Pedagogía, 461, 72-74.
Caride, J.A. (2003). Las identidades de la educación social. Cuadernos de Pedagogía, 321, 47-51.
Cyrulnik, B. (2003). El murmullo de los fantasmas. Volver a la vida después de un trauma. Barcelona: Gedisa.
Echeita, G. & Calderón, I. (2014). Obstáculos a la inclusión: cuestionando concepciones y prácticas sobre la evaluación psicopedagógica. Àmbits de Psicopedagogia i Orientació, 41. http://ambitsaaf.cat/article/view/805
Frankl, V. (1991). El hombre en busca de sentido. Barcelona: Herder.
Freire, P. (1982). Creating alternative research methods: learning to do it by doing it. En Hall, B., Gillette, A. & Tandon, R. (Eds.), Creating knowledge: A Monopoly? Participatory research in development (pp. 29-37). Toronto: International Council for Adult Education.
Galeano, E. [Club de Escritura] (2017, 29 de septiembre). Eduardo Galeano: estamos hechos de historias [Video]. Youtube. https://youtu.be/r2A98jW5XWs
Garrido, E. (6 de Febrero de 2014). El Constitucional niega el derecho de un niño autista a un colegio ordinario. Diario El País. https://bit.ly/3wV26YO
Giroux, H. (1983). Theories of reproduction and resistance in the new sociology of education: A critical analysis. Harvard Education Review, 53(3), 257-293. https://doi.org/10.17763/haer.53.3.a67x4u33g7682734
Giroux, H. (2019). Defender que la educación tiene que ser neutral es decir que nadie debe rendir cuentas de ella. Dossier Entrevistas CCBLAB. Entrevista realizada por João França (02/07/2019). https://bit.ly/38tVbfNhooks, B. (1989). Talking back: Thinking feminist, thinking black. Boston: South End.
Kaufman, J., & Herzog, A. (Eds.). (2005). Collected poems of muriel rukeyser. Pittsburgh: University of Pittsburgh Press.
Kemmis, S. (2006). Participatory Action Research and the public sphere. Educational Action Research, 14 (4), 459-476. https://doi.org/10.1080/09650790600975593
Kohan, M. (27 de septiembre de 2020). “Segregar a los menores con necesidades especiales es condenarlos a una muerte educativa y social”. Diario Público. https://bit.ly/3LYizj6
Lafuente, A. (31 de julio de 2013). Ciencia ciudadana: los itinerarios amateur, activista y hacker. INTEF Blog. https://bit.ly/3LY3jTr
Lafuente, A. & Estaella, A. (2015). Modos de ciencia: pública, abierta y común. En Albagli, S., Maciel, M. L. & Abdo, A. H. (Eds.), Open Science, open issues. Río de Janeiro: Unirio.
Mèlich, J. (2001). La palabra múltiple. Por una educación (po)ética. En Larrosa, J. & Skliar, C. (Eds.), Habitantes de Babel. Políticas y poéticas de la diferencia (pp. 393-410). Barcelona: Laertes.
ONU (13 de diciembre de 2006). Convención sobre los derechos de las personas con discapacidad. New York: Organización de Naciones Unidas. https://bit.ly/2X6oZGC
ONU, Comité sobre los Derechos de las Personas con Discapacidad (CDPD) (2020). Dictamen aprobado por el Comité en virtud del artículo 5 del Protocolo Facultativo, respecto de la comunicación núm. 41/2017, CRPD/C/23/D/41/2017. https://bit.ly/3sZJ40U
Palacios, A. (2008). El modelo social de discapacidad: orígenes, caracterización y plasmación en la Convención Internacional sobre los Derechos de las Personas con Discapacidad. Madrid: Cinca. https://bit.ly/3NyDM4q
Rutter, M. (1993). Resilience: Some conceptual considerations. Journal of Adolescent Health, 14, 626-631. https://doi.org/10.1016/1054-139X(93)90196-V
Saura, V. (4 de Julio de 2017). La justicia devuelve a Adrián a la escuela ordinaria. El Diario de la Educación. https://bit.ly/3auSAmq
Skliar, C. (2018). Educar en épocas de aceleración e innovación. Revista Nómadas, 49, 13-25. https://doi.org/10.30578/nomadas.n49a1
Slee, R. & Allan, J. (2001). Excluding the included: A reconsideration of inclusive education. International Studies in Sociology of Education, 11, 173-192. https://doi.org/10.1080/09620210100200073
Soldevila, J., Calderón, I. & Echeita, G. (2022). My (school) life is expendable: radicalizing the discourse against the miseries of the school system. In J. Collet, M. Naranjo & J. Soldevila (Ed). Global struggles for inclusive education: lessons from Spain. Switzerland: Springer. https://doi.org/10.1007/978-3-031-11476-2_2
Spivak, G.C. (2006). Can Subaltern Speak? In C. Nelson & I. Grossberg (Eds.), Marxism and the Interpretation of Culture (pp. 271-316). London: Macmillan.
UNESCO (1994). Declaración de Salamanca y Marco de Acción sobre Necesidades Educativas Especiales. París: UNESCO. https://bit.ly/2ZZW76O
UNESCO (2017). Guía para asegurar la inclusión y la equidad en la educación. Paris: UNESCO. https://unesdoc.unesco.org/ark:/48223/pf0000259592
UNESCO (2020). Global Education Monitoring Report 2020. Inclusion and education: All means all. París: UNESCO. https://es.unesco.org/gem-report/report/2020/inclusion
Ungar, M.P. (2003). Creciendo peligrosamente: Formando la resiliencia escondida en Jóvenes y Familias difíciles. Conferencia presentada en la Universidad de Antioquia. Medellín, Colombia.
Downloads
Published
Issue
Section
License
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Copyright and right to archive
The published version of the articles can be self-archived by their authors in open access institutional and thematic repositories. However, Pedagogía Social. Revista Interuniversitaria must authorize partial or global reutilisation on new papers or publications.
Published papers must be cited including the title of the journal Pedagogía Social. Revista Interuniversitaria, issue, pages and year of publication
Ethical responsibilities
Pedagogía Social. Revista Interuniversitaria does not accept any material that has been previously published in other documents or publications. Authors are responsible for obtaining the required permissions for partial or global reproduction any material from other publications, and to correctly quote its origin.
Pedagogía Social. Revista Interuniversitaria is obliged to detect and report fraudulent practices.
Only those who have intellectually contribute to the development of the paper must appear as authors.
The journal expects authors to declare any commercial partnership that might entail a conflict of interest with respect to the submitted article.
Authors must mention in the article, preferably in the “methodology” section, that the procedures used during the samplings and controls have been made after getting informed consent.
The journal will not use any received contribution in a way other than the goals described in these guidelines.
Copyright Notice
© Pedagogía Social. Revista Interuniversitaria. Papers published in both the printed and online versions of this Journal are property of Pedagogia Social. Revista Interuniversitaria, being required to cite the source in any partial or total reproduction.
Unless otherwise stated, all content of this electronic journal is distributed under "Creative Commons Attribution-Non commercial 3.0 Spain" (CC-by-nc) license for use and distribution. The informative version and the legal text of this license is available here. This has to be expressly stated in this way when necessary.