Health informatics: tres temas clave y contexto académico-profesional

Palabras clave: Healht informatics, Alfabetización informacional, Ciencia de datos, Empoderamiento del paciente, Equidad.


Se plantea una aproximación al concepto de Health informatics y se revisa el estado, tendencias y principales retos en relación con tres aspectos clave en la evolución del mismo: el empoderamiento del paciente, la equidad en salud, y la ciencia de datos de aplicación sanitaria. Se finaliza con un breve recorrido por el contexto académico y de asociaciones profesionales, tanto a nivel español como internacional.


Alonso-Puelles, Andoni (2017). “Qué aprendimos del SIDA y de la electro-sensibilidad: comunidades vulnerables y empoderamiento”. El profesional de la información, v. 26, n.1, pp. 106-113.

Altexsoft (2016). “7 ways data science is reshaping healthcare”. Altexsoft, Octubre 2016,

Bath, Peter A. (2008). “Health informatics: Current issues and challenges”. Journal of information science, v. 34, n. 4, pp. 501-518.

Bitsaki, Marina; Koutras, Christos; Koutras, George; Leyman, Frank; Steimie, Frank; Wagner, Sebastian; Wieland, Matthias (2017). “ChronicOnline: Implementing a mHealth solution for monitoring and early alerting in chronic obstructive pulmonary disease”. Health informatics journal, v. 23, n. 3, pp. 197-207.

Cohen, Alan B.; Grogan, Colleen M.; Horwitt, Jedediah N. (2017). “The many roads toward achieving health equity”. Journal of health politics, policy and law, v. 42, n. 5, pp. 739-748.

Chang, Wei-Ching; Fraser, Joy H. (2017). “Cooperate! A paradigm shift for health equity”. International journal for equity in health, v. 16, n. 12.

Dahl, Stephan; Eagle, Lynne (2016). “Empowering or misleading? Online health information provision challenges”. Marketing intelligence & planning, v. 34, n. 7, pp. 1000-1020.

Dahlgren, Göran; Whitehead, Margaret (2007). European strategies for tackling social inequalities in health: Levelling up part 2. World Health Organization (WHO).

Erfani, Seyedezahra-Shadi; Abedin, Babak; Blount, Yvette (2017). “The effect of social network use on the psychological well-being of cancer patients”. Journal of the Association for Information Science & Technology, v. 68, n. 5, pp. 1308-1322.

Gad-El-Rab, Wessam; Zaïane, Osmar R.; E-Hajj, Mohammad (2017). “Formalizing clinical practical guideline for clinical decision suport systems”. Health informatics journal, v. 23, n. 2, pp. 146-156.

Genuis, Shelagh K.; Bronstein, Jenny (2017). “Look-ing for ‘normal’: Sense making in the context of health disruption”. Journal of the Association for Information Science & Technology, v. 68, n. 3, pp. 750-761.

Groselj, Darja (2014). “A webometric analysis of on-line health information: Sponsorship, platform type and link structures”. Online information review, v. 38, n. 2, pp. 209-231.

Househ, Mowafa; Nassif, Hossain; Jamal, Amr; Zakaria, Nasriah; Elmetwally, Ashraf; Alsalamah, Majid; Khalifa, Mohamed (2017). “A cross-sectional content analysis of Android applications for asthma”. Health informatics journal, v. 23, n. 2, pp. 83-95.

Khoury, Mouin J.; Iademarco, Michael F.; Riley, William T. (2016). “Precision public health for the era of precision medicine”. American journal of preventive medecine, v. 50, n. 3, pp. 398-401.

Lal, Anita; Moodie, Marjorie; Peeters, Anna; Carter, Rob (2017). “Inclusion of equity in economic analyses of public health policies: systematic review and future directions”. Australian and New Zealand Journal of public health.

Liebsuetrakul, Tippawan; Prappre, Tagoon; Pairot, Pakamas; Oumudee, Nurlisa; Islam, Monir (2017). “Development of a web-based epidemiological surveil-lance system with health system response for improving maternal and newborn health: Field-testing in Thailand”. Health informatics journal, v. 23, n. 2, pp. 109-123.

Lynch, Julia F.; Perera, Isabel M. (2017). “Framing health equity: US health disparities in comparative perspective”. Journal of health, politics, policy and law, v. 42, n. 5, pp. 803-838.

Mandl, Kenneth D.; Kohane, Isaac S. (2016). “Time for a patient-driven health information economy?”. The New England journal of medecine, n. 374, pp. 205-208.

Medford-Davis, Laura N.; Chang, Lawrence; Rhodes, Karin V. (2017). “Health information exchange: What do patients want?”. Health informatics journal, v. 23, n. 4, pp. 268-278.

Mingle, Damian (2015). “4 big reasons why healthcare needs data science”. CIO from IDG, 10 noviembre.

Mittelstad, Brent D.; Floridi, Luciano (2016). “The ethics of big data: Current and foreseeable issues in biomedical contexts”. En Mittelstad, Brent D.; Floridi, Luciano (eds.). The ethics of biomedical big data, pp. 445-480 Cham: Springer.

Montesi, Michela; Álvarez-Bornstein, Belén (2017). “Defining a theoretical framework for information seeking and parenting: Concepts and themes from a study with mothers supportive of attachment parenting”. Journal of documentation, v. 37, n. 2, pp. 186-209.

Nadri, Hamed; Rahimi, Bahlol; Timpka, Toomas; Sedghi, Shahram (2017). “The top 100 articles in the medical informatics: a Bibliometric analysis”. Journal of medical systems. v. 19, n. 10.

Ortiz-Repiso; Virginia; Cobarsí-Morales, Josep (2017). “ADI, ASIS, ASIS&T…, tendencias y oportunidades de networking profesional”. Anuario ThinkEPI, v. 11, pp. 63-69.

Palumbo, Rocco; Annarumma, Carmela; Adinolfi, Paola; Musella, Marco (2016). “The missing link to patient engagement in Italy: The role of health literacy in enabling patients”. Journal of health organization and management, v. 30, n. 8, pp. 1183-1203.

Ray, Rashwan; Sewell, Abigail A.; Gilbert, Keon L.; Roberts, Jennifer D. (2017). “Missed opportunity? Leveraging mobile technology to reduce racial health disparities”. Journal of health politics, policy and law, v. 42, n. 5, pp. 901-924.

Shaban-Nejad, Arash; Lavigne, Maxime; Okhmatovskaia, Anya; Buckeridge, David L. (2016). “PopHR: A knowledge-based platform to support integration, analysis, and visualization of population health data”. Annals of the New York Academy of Sciences, v. 1387, pp. 44-53.

St.-Jean, Beth (2017). “Factors motivating, demotivating, or impeding information seeking and use by people with type 2 diabetes: A call to work toward preventing, identifying, and addressing incognizance”. Journal of the Association for Information Science & Technology, v. 68, n. 2, pp. 309-320.

Van-Staa, Tjeerd-Pieter; Goldacre, Ben; Buchan, Iain; Smeeth, Liam (2016). “Big health data: the need to earn public trust”. British medical journal, v. 354.

Wailoo, Keith (2017). “Cancer and race: What they tell us about the emerging focus of health equity”. Journal of health politics, policy and law, v. 42, n. 5, pp. 789-801.

E. Comunicación científica, edición y fuentes de información